One Step Closer

Yes! I am one step closer…and I’m not talking about my favorite Linkin Park song. I had my yearly doctor’s appointment today and it DID make a difference that I scheduled my blood work while I was having a reaction. Let me be clear…I am not excited that the ANA test came back positive but I am relieved to be one step closer to it having a name.

She gave me a list of the ones that she thinks it might be and is ordering more blood work. I have looked at them all and the one that seems to fit best is Sjogren’s Syndrome. One of the doctors at work has already given me the dry eye diagnosis and the dry mouth…I guess we will see after the 14th. My doctor told me when I go to the peridontist to bring my paperwork and tell her my ANA test came back positive. This explains so much! I knew my dental issues were related and now I have proof.

She advised me to keep doing what I am doing for now. This latest reaction was to an ingredient in a flavored bag of water lily pops…yeast extract, which now goes on the foods that are trying to kill me list.

KB is coming over Friday for dinner. Originally she suggested that we should go out to eat. It’s just easier for me to cook, I know what’s in it and I don’t have to worry about having a reaction. I have no idea what I’m making yet but it will be nice to have some adult conversation this week.  I shouldn’t say it like that…I chose to lay low and recharge this week.

Today I decided to stop at the vault restaurant and pick up dinner. I made the Boy a ton of honey sriracha chicken yesterday so he was good, I ordered the Girl her salad with homemade bread and butter, and I got my favorite flatbread. I ate the toppings and the beagle ate the flatbread so everyone was happy. It’s one of the rare things I can eat out and not have a reaction to and since I’m not usually on that side of town a vacation day seemed like the perfect time to stop.  I’m not a fan of soggy to go box food so after five minutes in the oven, it was good to go..

I had requested travel information from Kentucky and was pleasantly surprised to receive a map in the packet. I highlighted my route and put it in a place where I will see it every day. I’ve been working with manifestation and I think the map will help keep things in perspective.

Those are the highlights of my day…I have lots of things to think about/research…Zia

 

About dragonflyzia

I am just a woman finally accepting that I was never meant to be in the box. I don't fit into any stereotypes, please don't try and label me, that doesn't work either. I am embracing my uniqueness in ways that are new and challenging to me, so that I may continue to grow and never stop learning.
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3 Responses to One Step Closer

  1. AmyRose🌹 says:

    I would very much like to encourage you, Zia. For about 2 years I had massive allergic reactions to about every single food there is. I had to figure out what I could eat which in of itself was a huge endeavor. No my doctor did nothing and yes I told her about what was going on. Evidently she didn’t believe me. I was on my own. I eliminated (LONG process) what I was reacting to and then figured out what I could eat. I then did research and followed the bread crumbs as to what supplements to take to boost my immune system and to decrease my inflammation. I also focused on my GI tract getting that stronger. All that I did and continue to do it today. That was a LONG process and of course it took a LONG time for me to see any results. When I took my first bite of chocolate thinking I was strong enough to without getting a reaction, for 3 days I waited with abated breath. NO reaction! I was elated. Since then I have been slowly adding to my diet to get more of a variety. I haven’t eaten out or eaten other people’s food for over 2 years and I don’t know if I will. We’ll see. It is such a joy to be able to eat almost normally without the fear of getting horrid reactions. You’re lucky your doctor is willing to help you. Count your blessings and KNOW you can get better. xoxox

    • dragonflyzia says:

      Thank you Amy for giving me hope! I’m sorry we both had to go through the struggle of food reactions alone. By the time I made the doctor’s appointment last year I already knew it was triggered by food. I took three or four ANA tests last year and they were all negative. I truly believe that the only reason I had a positive result this year was because I scheduled my blood work during a reaction. I am lucky that my doctor is on my side and she knows I am not interested in prescription drugs…fingers crossed it stays that way. Once she tells me what I already know that’s when I will go to my local health food store and talk to the owner. I am confident she will put me on the right track. I’m pretty happy with the supplement regime I am currently taking but there’s always room for improvement. I look forward to the day when I can eat and not worry about a reaction. I also need to start practicing yoga again…I lack the discipline even though I know it helps. Sometimes I am my own worst enemy. (insert eye roll) Thank you for taking the time to share your story with me. You are a blessing my friend. xoxo

      • AmyRose🌹 says:

        You are so very welcome, Zia. I know how alone I felt when I went through years of figuring out what I could and could not eat. Your journey is very challenging but I know you can do it!!

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